Grief

“There is a sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are the messengers of overwhelming grief, of deep contrition, and of unspeakable love.”
— Washington Irving

I woke up the other day and as I was laying in bed I was thinking, if I don’t start my period today I will take a pregnancy test, Stacy and I have been trying to conceive for 13 months. We had been getting fertility treatments (more on that process later) and I decided to take a month off, to give my body some time away from the medications. Maybe I will be one of those stories– the woman who gets pregnant after fertility treatments stop?! Maybe it will be like when I found out I was pregnant with Grey, no real symptoms, just not starting my cycle and hoping pregnancy was the reason?! I thought–don’t get too excited. I went to the bathroom and there it was, old aunt flo. Damn, damn, damn! I laid back in bed and I thought that I don’t have to cry about it, I have been through this before. But, yeah – that didn’t happen.

 

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“Melancholy”  by Albert György

 

I spent most of the day crying and wondering why? Why won’t my body give me another baby? Having trouble conceiving after loss adds another layer of intense grief to my every day pain. At first, I was so hopeful that we were going to give Grey a sibling. But, as time continues to pass and my time away from Grey gets longer and longer, I am often filled with fear and sadness. We are still trying, I am not ready to give up, but now we are also exploring other options on how to expand our family.

I think about everything that I am missing out on, pretty much daily.  My son should be 19 months old– walking, taking, growing, eating, laughing, falling and playing with his cousins and friends. I should be going on playdates, taking a gazillion pictures and planning fun things for us to do.  We should be lounging at the lake or hanging out at home with the dogs. I should be a over-worked, exhausted and happy mom. Grey was supposed to bring me closer to people. Lately, I feel so far away from everyone and very, very lonely. I get nervous going out into the world, scared to meet a stranger who may ask me if I have any children. I feel embarrassed and ashamed that I am not strong enough to ask about or to spend time with the kiddos who are the same age as Grey. Not that I have not been around children, I work with families, I see babies and children every day. I just dreamt so much about my future with Grey and his friends and their mama’s – I am still working through that loss as well.

I think back onto the person that I used to be; happy, fun, a party planner, a positive person, someone who was there for her friends and family. Another loss mom and I were having a conversation about our grief and she said, “it makes you feel so selfish.” Whammo! Yes! She was so right and I felt relief when she said that. It is in my nature to be a giver and, right now, I just don’t have it in me. It is okay to be protective of myself and my emotions. Still, I mourn be the old me, I want to go back to when it was us and Grey and the future. Time feels like it is standing still for me while everyone around me is growing and moving and living.

I wonder sometimes what it is like to be someone who shares their truth more? I admire some of the loss mom’s out there that can share their feelings on social media regularly. Would it make me feel better if I was more like that? I likely can’t change how I share my truth and how often I do it, maybe that will change as time goes on. This blogs helps as it is important to talk about infant/child loss no matter how heavy it feels. Right now, I take things day by day and acknowledge little successes. The way I feel now won’t be the way I feel forever, will it? I think about a future and try to imagine it being happy.

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Be brave

Be courageous

Focus on hope

 

 

 

SIDS

What is Sudden Infant Death Syndrome? I try to think back on what I thought about SIDS prior to loosing Grey and it is hard to remember what I knew or what I thought I knew about SIDS. When I would think of all the potential things that could happen to my son it was not at the top of my list. I remember getting so scared that he would get kidnapped. I stayed up some nights thinking about how could I put a tracking device on him. What if I turned my back for a second at the store or at the park? What if someone was babysitting him and they didn’t have their eyes on him for a few minutes? A babysitter will not love him or worry about him the way that I will. What if he runs behind a car that is backing up or chokes on a toy? How will I keep him safe when we go to the lake? I would think of endless possible scenarios and how I would prevent them from happening.

We practiced all safe sleep practices; have baby in a bassinet by your bed, don’t let baby get too hot, don’t put baby on soft sleep surface– check, check, check. Baby monitor -check. Breastfeed- check. Nothing in the crib with baby while sleeping, don’t let baby co-sleep with parents– check, check. Saying the words, “SIDS prevention tips” makes me crazy and so, so mad. See, the reality is there is NO WAY to prevent SIDS. That is a tough sentence to write and a very hard reality, I question that truth often. How is it even possible? Why does a healthy baby go to sleep and not wake up? The reality of losing your child to SIDS, to not having an actual answer as to why your child died, is incredibly painful. Trust me, I asked all the questions. I made sure that no stone was unturned in figuring out what happened to Grey. When I spoke to the medical examiner on the phone she told me that babies that die from SIDS simply shut off. I asked her if anything was blocking his airway and she assured me that she would be able to tell from the autopsy if something was. She told me that we did nothing wrong and that there was nothing that we could do.

So what is it? Here are the facts….

  • Major cause of death in infants 1 month to 1 year of age, with most deaths occurring between 2 and 4 months.
  • Sudden and silent– the infant is seemingly healthy
  • A death often associated with sleep and with no sings of suffering
  • A recognized medical disorder
  • Determined only after an autopsy, an examination of the death scene, and a review of the infants and family’s clinical histories.
  • An infant death that leaves unanswered questions, causing intense grief for parents and families.

What it is not…

  • Preventable
  • Suffocation
  • Caused by vomiting and choking or by minor illness
  • Caused by vaccines or other immunizations
  • Child abuse or neglect
  • The cause of every unexpected infant death
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The Triple Risk Model

Research that is being conducted to find an answer has several different theories or risks that can lead up to the event. There is the Triple Risk Model as per the above graphic– it is not one thing that will cause a SIDS death but several risk factors that all have to align at the same time. The biggest and most promising research being done is on brain abnormalities in our babies, “infants who die of SIDS may have abnormalities in several parts of the brainstem.” The research also states, “infants were found to have decreased binding of serotonin in the nucleus raphe obscurus { }, as well as four other brain regions.” Basically, a disconnect between the brain the the respiratory system -they stop communicating and breathing stops. Our babies arousal alert system stops and they don’t know that they are in danger. This is why all the emphasis put on the safe sleep campaign rubs me the wrong way. Babies are still dying and, I believe, we are not looking into the other reasons with as much vigor. It is so easy to promote safe sleep, it is simple, understandable and easy to communicate the message. When we start taking about brain abnormalities and the respiratory system it gets difficult to understand and explain. I have learned that 20% of babies that die from SIDS are in child care, was that his outside stressor? The questions can be endless and the heartbreak is tremendous. More money and time needs to be put into research to unlock the mystery of SIDS. Please see the links below for more information.

Research used was taken from Northwest Infant Survival and SIDS Alliance website: What is SIDS (PDF). 

https://www.nwsids.org/

http://sidsguild.org/

https://news.microsoft.com/features/love-aaron-children-may-susceptible-sids/

https://owletcare.com/

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Tummy time – March 12, 2017

 

March 17th

“The death of a baby is like a stone cast into the stillness of a quiet pool; the concentric ripples of despair sweep out in all directions, affecting many, many people.”

This post may be upsetting, trigger.

I was nearing the end of my maternity leave. I started back to work part-time, as a way to ease Grey, and myself, into daycare and our time apart.  It was a Friday, his second full day at daycare. I dropped him off and headed to work. At lunch I had contemplated stopping by to visit as the sitter’s house was less than 10 minutes from work but I thought, it’s the weekend, I want to get him home early. That decision has endlessly haunted me. I had just gotten back from running errands during lunch. It was a little after 12:30 and I was showing a co-worker a video of Grey. He walked away and I noticed that I had missed a call, it was the babysitter. Before I had a chance to call back she called again,

“Grey’s not breathing!” she cried

“What?!”

“Ambulance is on the way”

I hung up the phone and ran out of the office. It had snowed the night before so the roads were slick and snowy, I was driving so fast and I didn’t care. I managed to call Stacy and tell him what was happening, not having any information for him as I just wanted to get to Grey. When I turned the corner I saw that the ambulance was already there. I ran into the house and saw my son on the floor. The EMT was already administering CPR and I went into a state of complete shock. My tiny, helpless son was surrounded by technicians and next thing I remember is them telling me that they were heading to the hospital. Did I want to ride in the ambulance or someone would drive me? “I am staying with my son!” I shouted. I had to be assisted to the ambulance and they put me in the front seat, not allowing me in the back with Grey.

Driving to the hospital I was just saying, “please, please, please, please” over and over, praying so hard for Grey to be ok. When we arrived, I saw my husband running into the hospital. The next moments are like flashes, getting escorted into the hospital, two hospital chaplains waiting for us, my husband arriving. I was hyperventilating and I heard him say under his breath, “be strong.” I took some big deep breaths of air and thought, this is the best hospital for children, Grey will be ok. Next thing I know, the doctor walked into the room and knelt down by Stacy, “I am sorry, your son is dead.” I just screamed and wailed. NO! No, no, no, no, no. How could this be happening? This isn’t real.

They told us that we could see him. We walked into the operating room and he was on the table. How could this be?! I embraced my son and kissed him and rubbed his head. I had my face to his cheek, kissing him and looking at him, “Grey?” He looked so peaceful, like he could wake up and look at me with his big, beautiful eyes. A police officer came into the room and said that he needed to examine Grey, we stepped out and my mother in law and Aunt had arrived.

The police officer informed us that they were conducting an investigation to find out what happened. He stated that at this point, they did not find any neglect on the part of the babysitter but assured us that a full investigation would occur. We went back into to OR to spend time with Grey and to say our final goodbyes. Leaving him was devastating, I didn’t want to. How could I leave without my son?

We went home and I went into Grey’s room, grabbed a handful of his clothes and blankets and laid in our bed. Our families and friends came over and I couldn’t move, they came into our room and hugged us, provided what support they could. That evening, after everyone left and Stacy was asleep I was still just, awake, confused, in shock. I called my best friend, Leah, and she came over right away. I hadn’t yet actually cried and that was bothering me. Realizing now that the shock was preventing me from that release. When she came over and it was just us I was able to let go – crying harder than imaginable. Also, my milk was in and way ready to come out- I was in pain from needing to breast feed. I left my pump at work so Leah went and bought me a pump at Target. I pumped, and cried, and cried and cried.

Why do I want to share the story of this day? Because after Grey died I scoured the internet looking for answers. What happened, why? What did other families experience? Why did my perfectly healthy baby go to sleep and not wake up? I was so grateful for the strong and brave moms out there that were able to share their stories. I hope that by sharing Grey’s story it may provide comfort and healing to other moms.  As I am writing this post it has been over a year since that day and I have just found the strength to share. My love for Grey continues to grow and I will fight for him forever.

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My very last picture of Grey ~March 15, 2017~

 

Welcome ~ About

Grey Rowan Everly

 

Thanks for joining me!

“I didn’t want to kiss you goodbye, that was the trouble; I wanted to kiss you goodnight. And there’s a lot of difference.” Ernest Hemingway

Hi my name is Sasha, I live in the Great Pacific Northwest with my husband, Stacy, our 2 dogs and our beautiful angel baby, Grey. We had 87 magical days with our son before he was taken from us by the mystery of SIDS on March 17th, 2017. The days and months since his passing have been the most challenging times I have ever experienced. I get asked sometimes, “How do you do it?” or “I couldn’t imagine,” and honestly, I agree! I can’t imagine and I don’t know. I think about the love I have for my son and it simultaneously fills me with incredible joy and crushing sadness. One thing I know for sure, I am so thankful for my support system; my husband, family, friends and co-workers. I am thankful for the other SIDS mom’s I have met and the internet, really, the internet! Reading other families stories, seeing normal people affected by SIDS and how they are coping makes this journey a little less isolating. This blog is my way of honoring my son and his beautiful time with us, because really, all I want to do is talk about him everyday. I want him to be proud of me. Sharing his story and my journey feels right, no matter how terrified I am to do it.

 

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Grey’s first trip to Seattle February 2017