The Darkness

It is very important to me to provide information about SIDS, what I have discovered and share current research.  My hope is that other loss moms have found my blog and are gaining some comfort or insights from my posts. I was reading through my blog posts and started to get worried that I wasn’t expressing how I really feel on my day-to-day. Being a mom who has lost her child is on my mind everyday from the second I wake-up until I lay my head to sleep at night and sometimes into my dreams. Focusing on hope, love and community helps me get through each day. I feel like it is important for me to share some of the real darkness I have felt. I’m sharing this because I get comfort knowing that other moms experience similar pain, grief is so lonely and not easy to talk about.  Yes– I get up and take care of myself, go to work, make dinner, care for my home, spend time with friends, smile and laugh. My inner struggle, my darkness, I keep secret– scared of sharing my true feelings and emotions with others.

Several months after the shock of losing Grey settled in I put a lot of thought into taking my own life. How could I go on? My pain was immense. I had a few freeway road rage incidents where I didn’t care if the end result was me driving into a wall. I researched how to take my own life, what pills could I take, could I poison myself? Can I sit in my car in the garage? Would someone do it for me when I was out walking the dog? I got my husband’s gun and held it in my hands and wondered where I would pull the trigger. I thought I was being slick and hiding these thoughts until my husband asked me if I was going to hurt myself. I reassured him that I wouldn’t but, honestly, I was scared that I might.

I haven’t touched Grey’s room. His dirty clothes are still in the hamper – his 6 and 12 month outfits hanging in the closet. His room still smells like a baby and I feel his presence when I go in there. Sometimes, I go in and rock in the chair and smell his clothes and think of him in my arms. I sleep with his favorite baby blanket and look for it in the night to make sure that it is covering me or that I am touching it in some way.

Grey’s urn is on my nightstand.

I imagine sometimes that he is with us. When I am relaxing outside I imagine him playing near me. When we go places or do fun things I always wish he was with us. I cried for 4 hours on a road trip awhile back – used to crying in private, I couldn’t hide my tears and pain from Stacy. Why did this happen?? My Dad had been battling cancer for a few years and passed away just 5 months after Grey.  Still deeply mourning my son, I could’t separate my grief, I imagined him with me at the hospital. I envisioned him sitting on the hospital bed with his grandpa, bringing us light at a dark time.

When I am working and I start to cry at my desk I try to make my way to the bathroom unnoticed. I cry in the stall and learned to lean my head over my knees and let my tears drop down to the floor. I often cry in my car, it is the only place that I am really alone with my thoughts. I have screamed at the top of my lungs driving down the street because sometimes crying isn’t enough.

I see other moms who have had babies since losing Grey and I can barely contain my tears– oftentimes avoiding an interaction at all costs. It takes a lot of effort and planning to be around babies and kids that are the same age as Grey. I could not attend my nieces 5th birthday this year – I sat in the parking lot of the pizza parlor sobbing uncontrollably and trying to convince myself I was strong enough to go inside.

I feel sorry for myself, a lot.

I had to stop social media for a significant amount of time. I currently use it–cautiously.  I had to unfollow some friends and even block a few. I have had pregnancy and birth announcements put me out for an entire day. I also had to quit HGTV (and a few other shows I used to watch) – one family had a particularly cute pregnancy announcement at the end of their segment and I ended up having to take the next day off of work. Media is extremely triggering.

am truly happy for you –just so very sad for myself. 

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~My happy boy~ March 10th, 2017

Today marks one week from Grey’s second angelversary, I can’t believe it has been two years. It feels like yesterday and also like a thousand years ago….a happy dream or another life. I will say that each day has gotten better but the emptiness I feel without him will always be heavy on my heart.

I want to end today’s post with a quote I found in the Guardian:

“Compassion literally means to suffer alongside. The greatest gift we can give the bereaved, with the loneliness that accompanies loss, is to not run away”

 

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Taking pictures in the afternoon light ~March 6, 2017~

March 17th

“The death of a baby is like a stone cast into the stillness of a quiet pool; the concentric ripples of despair sweep out in all directions, affecting many, many people.”

This post may be upsetting, trigger.

I was nearing the end of my maternity leave. I started back to work part-time, as a way to ease Grey, and myself, into daycare and our time apart.  It was a Friday, his second full day at daycare. I dropped him off and headed to work. At lunch I had contemplated stopping by to visit as the sitter’s house was less than 10 minutes from work but I thought, it’s the weekend, I want to get him home early. That decision has endlessly haunted me. I had just gotten back from running errands during lunch. It was a little after 12:30 and I was showing a co-worker a video of Grey. He walked away and I noticed that I had missed a call, it was the babysitter. Before I had a chance to call back she called again,

“Grey’s not breathing!” she cried

“What?!”

“Ambulance is on the way”

I hung up the phone and ran out of the office. It had snowed the night before so the roads were slick and snowy, I was driving so fast and I didn’t care. I managed to call Stacy and tell him what was happening, not having any information for him as I just wanted to get to Grey. When I turned the corner I saw that the ambulance was already there. I ran into the house and saw my son on the floor. The EMT was already administering CPR and I went into a state of complete shock. My tiny, helpless son was surrounded by technicians and next thing I remember is them telling me that they were heading to the hospital. Did I want to ride in the ambulance or someone would drive me? “I am staying with my son!” I shouted. I had to be assisted to the ambulance and they put me in the front seat, not allowing me in the back with Grey.

Driving to the hospital I was just saying, “please, please, please, please” over and over, praying so hard for Grey to be ok. When we arrived, I saw my husband running into the hospital. The next moments are like flashes, getting escorted into the hospital, two hospital chaplains waiting for us, my husband arriving. I was hyperventilating and I heard him say under his breath, “be strong.” I took some big deep breaths of air and thought, this is the best hospital for children, Grey will be ok. Next thing I know, the doctor walked into the room and knelt down by Stacy, “I am sorry, your son is dead.” I just screamed and wailed. NO! No, no, no, no, no. How could this be happening? This isn’t real.

They told us that we could see him. We walked into the operating room and he was on the table. How could this be?! I embraced my son and kissed him and rubbed his head. I had my face to his cheek, kissing him and looking at him, “Grey?” He looked so peaceful, like he could wake up and look at me with his big, beautiful eyes. A police officer came into the room and said that he needed to examine Grey, we stepped out and my mother in law and Aunt had arrived.

The police officer informed us that they were conducting an investigation to find out what happened. He stated that at this point, they did not find any neglect on the part of the babysitter but assured us that a full investigation would occur. We went back into to OR to spend time with Grey and to say our final goodbyes. Leaving him was devastating, I didn’t want to. How could I leave without my son?

We went home and I went into Grey’s room, grabbed a handful of his clothes and blankets and laid in our bed. Our families and friends came over and I couldn’t move, they came into our room and hugged us, provided what support they could. That evening, after everyone left and Stacy was asleep I was still just, awake, confused, in shock. I called my best friend, Leah, and she came over right away. I hadn’t yet actually cried and that was bothering me. Realizing now that the shock was preventing me from that release. When she came over and it was just us I was able to let go – crying harder than imaginable. Also, my milk was in and way ready to come out- I was in pain from needing to breast feed. I left my pump at work so Leah went and bought me a pump at Target. I pumped, and cried, and cried and cried.

Why do I want to share the story of this day? Because after Grey died I scoured the internet looking for answers. What happened, why? What did other families experience? Why did my perfectly healthy baby go to sleep and not wake up? I was so grateful for the strong and brave moms out there that were able to share their stories. I hope that by sharing Grey’s story it may provide comfort and healing to other moms.  As I am writing this post it has been over a year since that day and I have just found the strength to share. My love for Grey continues to grow and I will fight for him forever.

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My very last picture of Grey ~March 15, 2017~